#ENDOs project and narrative medicine

The #ENDOs project includes a narrative pathway, which aims to analyse and identify a lexicon used by people with endometriosis to describe their experience of the disease. The aim is to promote greater awareness among ENDOs of their condition through the use of narrative methods and tools, based on the premise that words and metaphors have the power to transform and influence the experience of illness.

A lexicon will be identified to create a Narrative and Emotional Dictionary that collects a common language between patients and healthcare professionals.

The Emotional Narrative Dictionary will be used to:

• Improve doctor-patient communication by reducing lexical ambiguity, linguistic misunderstandings and lack of awareness.
• Shorten diagnosis times.

• In narrative medicine training in European hospitals and healthcare facilities.
• As a resource in digital educational applications for healthcare professionals, researchers, digital communities, etc. to better understand and describe the disease from the patient’s perspective.
• As a resource for artists to create visual representations of the emotions, experiences and metaphors surrounding the endometriosis experience.

Read more about the story collection in Finnish here.