Empowering Patient Education in Cancer Care

Empowering Patient Education in Cancer Care

This research area aims to assess empowering patient education in cancer care. Instrument to identify knowledge expectations of patients with cancer has been developed and tested. Also, an empowering model for patient education utilizing the critical pathway of patients with cancer has been developed and tested.

Studies

Effectiveness of empowering patient education of patients with colorectal cancer

Principal investigator: Leena Tuominen, doctoral candidate, MNSc
leetuo(a)utu.fi

The aim of this study is to evaluate the effectiveness of empowering patient education on self-care activation, level of knowledge, quality of life, and risk of malnutrition among patients with colorectal cancer (CRC) during the chemotherapy treatment (CTX). The goal is to improve the quality of nursing care.
Primary research methods:

  1. A systematic review of reviews (n=9) analyzing outcomes of nursing interventions among patients with cancer
  2. Individual interviews of patients with CRC (n=15) analyzing their expectations towards nursing during the CTX
  3. Randomized control trial analyzing the effectiveness of empowering education on self-care activity among patients with CRC. Secondary outcomes are quality of life and risk of malnutrition.

Publications:

Tuominen, L., Ritmala-Castrén, M., Nikander, P., Mäkelä, S., Vahlberg, T., & Leino-Kilpi, H. (2021). Empowering patient education on self-care activity among patients with colorectal cancer – a research protocol for a randomised trial. BMC nursing, 20(1), 94. https://doi.org/10.1186/s12912-021-00617-z

Tuominen, L., Leino-Kilpi, H., & Meretoja, R. (2020). Expectations of patients with colorectal cancer towards nursing care- A thematic analysis. European Journal of Oncology Nursing, 44, 101699. https://doi.org/10.1016/j.ejon.2019.101699

Tuominen, L., Stolt, M., Meretoja, R., & Leino-Kilpi, H. (2019). Effectiveness of nursing interventions among patients with cancer: An overview of systematic reviews. Journal of Clinical Nursing, 28(13-14), 2401–2419. https://doi.org/10.1111/jocn.14762

Received empowering knowledge and its connection to self-efficacy, positive mental well-being and quality of life of patients with cancer

Principal investigator: Heli Arffman (ex-Palmu), MNSc, BNSc

The aim of the study is to examine received knowledge and its association to self-efficacy, positive mental well-being, and health-related quality of life. The study was conducted in outpatient clinics in two university hospitals in Finland and the study sample (n=350) consisted of patients with various types of cancer. The goal is to obtain information for developing patient education that enhances empowerment, mental well-being, and quality of life.

Publications:

Palmu H. 2021. Voimavaraistumista tukeva tiedollinen tuki ja sen yhteys minäpystyvyyteen, positiiviseen mielenterveyteen ja elämänlaatuun syöpäpotilailla. University of Turku, Department of Nursing Science. Turku, Finland. (Master’s thesis)

Reported studies

Interactive pathway, knowledge expectations during illness trajectory, and development of e-feedback knowledge in radiotherapy

Development of interactive pathway of patients with breast cancer

Principal investigator: Anne Ryhänen, PhD

The ultimate goal of this study was to evaluate the effect of the Breast Cancer Patient’s
Pathway program (BCPP) on the breast cancer patient’s empowerment by using the patient pathway as a patient education tool. In phase I, a systematic literature review was carried out to chart the solutions and outcomes of Internet-based educational programs for breast cancer patients. In phase II, a Delphi study was conducted to evaluate the usability of web pages and the adequacy of their content. In phase III, the BCPP program was piloted with 10 patients, and patients were randomized to an intervention group (n=50) and a control group (n=48).

Publications:

Ryhänen, A. (2012). Internet-based breast cancer patient’s pathway as an empowering patient educational tool (Doctoral dissertation)


Knowledge expectations of patients with cancer during the illness trajectory

The goal of this study was to develop a model for empowering patient education praxis for adult cancer patients during their illness trajectory. The model had two parts: a self-report instrument for identifying and communicating cancer patients’ knowledge expectations during illness trajectory; and an inter-professional screening instrument for cancer patients’ education process (patients’ cognitive resources, knowledge expectations, comprehension outcomes during illness trajectory).
This study combines several datasets from both cancer patients’ and health care professionals’ point of view.

Publications:

Vaartio-Rajalin, H., Huumonen, T., Iire, L., Jekunen, A., Leino-Kilpi, H., Minn, H., Paloniemi, J., & Zabalegui, A. (2016). Development of an inter-professional screening instrument for cancer patients’ education process. Applied Nursing Research, 29, 248–253. https://doi.org/10.1016/j.apnr.2015.07.002


Quality of radiotherapy care by the development of e-feedback knowledge

Principal investigator: Mervi Siekkinen, PhD, RT
mervi.siekkinen(a)utu.fi

The aim of this three-phase study was to develop the quality of radiotherapy care by the e-Feedback knowledge of radiotherapy -intervention (e-Re-Know). In Phase I, the purpose was to describe the quality of radiotherapy care and its deficits experienced by cancer patients. Based on the deficits in patient education in Phase II, the purpose was to describe cancer patients’ e-knowledge expectations in radiotherapy. In Phase III, the purpose was to develop and evaluate the outcomes of the e-Re-Know among breast cancer patients. The ultimate aim was to develop radiotherapy care to support patients’ empowerment with patient e-education.

Publications:

Siekkinen, M. (2014). Quality of radiotherapy care by development of e-feedback knowledge (Doctoral dissertation).