Empowering Patient Education in Cancer Care

Empowering Patient Education in Cancer Care

The purpose of this research area is to assess empowering patient education in cancer care. Instrument to identify knowledge expectations of patients with cancer has been developed and tested. Also, empowering model for patient education utilizing critical pathway of patients with cancer has been developed and tested.

Studies

Effectiveness of empowering patient education of patients with colorectal cancer

Principal investigator: Leena Tuominen, doctoral candidate, MNSc
leetuo(a)utu.fi

Aim of this study is to evaluate the effectiveness of empowering patient education on self-care activation, level of knowledge, quality of life and risk of malnutrition among patients with colorectal cancer (CRC) during the chemotherapy treatment (CTX). Goal is to improve quality of nursing care.
Primary research methods:

  1. Systematic review of reviews (n=9) analysing outcomes of nursing interventions among patients with cancer
  2. Individual interviews of patients with CRC (n=15) analysing their expectations towards nursing during the CTX
  3. Randomised control trial analysing the effectiveness of empowering education on self-care activity, level of knowledge, quality of life and risk of malnutrition among patients with CRC.

Publications:

Tuominen, L., Leino-Kilpi, H., & Meretoja, R. (2020). Expectations of patients with colorectal cancer towards nursing care- A thematic analysis. European Journal of Oncology Nursing, 44, 101699. https://doi.org/10.1016/j.ejon.2019.101699

Tuominen, L., Stolt, M., Meretoja, R., & Leino-Kilpi, H. (2019). Effectiveness of nursing interventions among patients with cancer: An overview of systematic reviews. Journal of Clinical Nursing, 28(13-14), 2401–2419. https://doi.org/10.1111/jocn.14762

Received empowering knowledge and its connection to self-efficacy, positive mental well-being and quality of life of patients with cancer

Principal investigator: Heli Palmu, MNSc student, BNSc
heli.j.palmu(a)utu.fi

Aim of the study is to examine received knowledge and its association to self-efficacy, positive mental well-being and health-related quality of life. The study was conducted in outpatient clinics in two university hospitals in Finland and the study sample (n=350) consisted of patients with various types of cancer. The goal is to obtain information for developing patient education that enhances empowerment, mental well-being and quality of life.

Reported studies

Interactive pathway, knowledge expectations during illness trajectory, and development of e-feedback knowledge in radiotherapy

Development of interactive pathway of patients with breast cancer

The ultimate goal of this study was to evaluate the effect of the BCPP to the breast
cancer patient’s empowerment by using the patient pathway as a patient education tool.
In phase I, a systematic literature review was carried out to chart the solutions and
outcomes of Internet-based educational programs for breast cancer patients. In phase
II, a Delphi study was conducted to evaluate the usability of web pages and adequacy
of their content. In phase III, the BCPP program was piloted with 10 patients and patients
were randomised to an intervention group (n=50) and control group (n=48).

Publications:

Ryhänen, A. (2012). Internet-based breast cancer patient’s pathway as an empowering patient educational tool (doctoral dissertation)


Knowledge expectations of patients with cancer during illness trajectory

The goal of this study was to develop a model for empowering patient education praxis for adult cancer patients during their illness trajectory. The model had two parts: a self-report instrument for identifying and communicating cancer patients’ knowledge expectations during illness trajectory; and an inter-professional screening instrument for cancer patient’ education process (patients’ cognitive resources, knowledge expectations, comprehension outcomes during illness trajectory).
This study combines several datasets from both cancer patients’ and health care professionals’ point of view.

Publications:

Vaartio-Rajalin, H., Huumonen, T., Iire, L., Jekunen, A., Leino-Kilpi, H., Minn, H., Paloniemi, J., & Zabalegui, A. (2016). Development of an inter-professional screening instrument for cancer patients’ education process. Applied Nursing Research, 29, 248–253. https://doi.org/10.1016/j.apnr.2015.07.002


Quality of radiotherapy care by development of e-feedback knowledge

The aim of this three phase study was to develop quality of radiotherapy care by the e-Feedback knowledge of radiotherapy -intervention (e-Re-Know). In Phase I, the purpose was to describe the quality of radiotherapy care and its deficits experienced by cancer patients. Based on the deficits in patient education in Phase II, the purpose was to describe cancer patients’ e-knowledge expectations in radiotherapy. In Phase III, the purpose was to develop and evaluate the outcomes of the e-Re-Know among breast cancer patients. The ultimate aim was to develop radiotherapy care to support patients’ empowerment with patient e-education.

Publications:

Siekkinen, M. (2014). Quality of radiotherapy care by development of e-feedback knowledge (doctoral dissertation).