Development of interactive breast cancer patient’s pathway

University of Turku, Department of Nursing Science, Finland
Principal investigator (PI): Anne Ryhänen, RT, PhD, Post-doc Researcher,
University of Turku, Department of Nursing Science, Finland
Contacts: Email. anne.ryhanen@utu.fi
Development of interactive breast cancer patient’s pathway (doctoral dissertation)

The Goal

The Goal of this study is to develop interactive Breast Cancer Patient Pathway (iBCPP) as an empowering patient educational tool. This study based in earlier study in which Breast Cancer Patient Pathway was created. In this study an interactive knowledge tests will be added regarding surgery, chemotherapy and radiotherapy care to intensify the learning of the patient. The purpose of this study is to find out how the usage of the iBCPP program affects breast cancer patients’ empowering process from the viewpoint of cognitive outcomes (knowledge expectations, perceptions of received knowledge, the difference between knowledge expectations and perceptions of received knowledge, knowledge level) and clinical outcomes (quality of life, anxiety and treatment-related side effects). The ultimate goal of this study is to evaluate the effect of the iBCPP program to the breast cancer patient’s empowerment by using the patient pathway as a patient education tool.

Phase I: In the first phase (2014), a literature review for clarifying the outcomes of interactive computer and Internet-based educational programmes for breast cancer patients is carried out and in-depth interviews (n = 20 patients from focus-group sample) concentrate on breast cancer patient’s knowledge expectations during the process of breast cancer care. IBCPP will be carried out according the results of interviews and literature review.

Phase II: A randomised control trial of patient education will be implemented testing the outcomes of an empowering education (iBCPP) intervention from January 2015 to December 2016.

The following hypotheses will be tested:

  1. Patients using the iBCPP program as a complement to standard care demonstrate higher cognitive outcomes (lesser difference between knowledge expectations and perceptions of received knowledge, higher knowledge level) than those exposed to standard patient education (including BCPP).
  2. Patients who used the iBCPP program as a complement to usual care demonstrate higher clinical outcomes (higher quality of life, less anxiety and treatment related side-effects) than those exposed to standard patient education (including BCPP).

Research team:

​Turku University, Department of Nursing Science, Finland :
Anne Ryhänen, RT, PhD, Principal investigator: organization of research team and data collection procedures, data collection, data analyses, intervention development, reporting research results according to dissemination pla​n
Helena Leino-Kilpi, RN, PhD, Professor, senior researcher, supervisor of the post-doc studies of applicant: scientifical supervision, participation to research reports
Satu Liljeroos, RN, MNSc-student, data collection, data analyses
Turku University, Research Centre of Applied and Preventive Cardiovascular Medicine:
Maiju Saarinen, MSocSc, statistical consultations, participation to research reports
Turku University, Faculty of Medicine
Heikki Korvenranta, MD, Docent, senior researcher, supervisor of the post-doc studies of applicant
Hospital District of Southwest Finland:
Heljä Lundgren-Laine, RN, PhD, Head of Nursing Development (intervention development)
Turku University Hospital, Oncologic Clinic, Finland :
Liisa Iire, RN, PhD, Director of Nursing at Oncologic clinic: consultations and assistance in organization of data collection in Turku
Heikki Minn, MD, Professor, Chief physician at Oncologic clinic: medical consultations, participation to research reports

Seija Klemetti, RN, PhD, Specialist Nurse, consultations and assistance in organization of data collection in Turku, participation to research reports
Helsinki University Hospital, Finland : Riitta Meretoja, RN, Docent, Development Manager, consultations and assistance in organization of data collection in Helsinki

Marja Renholm, RN, MNSc, PhD-student, Leading Director of Nursing at Internal Medicine units, consultations and assistance in organization of data collection in Helsinki

Vuokko Kolhonen, RN, MNSc, Director of Nursing at Oncologic/Cancer clinic, consultations and assistance in organization of data collection in Helsinki​