Empowering Patient Education in Long-term health problems

Empowering Patient Education in Long-term Health Problems

This research area aims to assess the profitability of patient education with patients with chronic disease. Research is focused on patients with chronic kidney disease, diabetes, and memory disorder. In this area, new research among patients with chronic disease is planned.

Research on patient education of patients with chronic kidney disease focuses on the usefulness and sufficiency of patient education. Research regarding patients with diabetes, theory of planned behavior is used to analyze the connection of self-care activities to patient’s feelings and patient education in China. A study about patients with a memory disorder is carried out in Catalonia, Spain. The Expected Knowledge of Hospital patients (EKhp) instrument is used to assess older patient’s knowledge for the improvement of patients’ and their relative’s empowerment.

Studies

Patient education of patients with chronic kidney disease

Research team:
Helena Leino-Kilpi, Professor, Nurse director, PhD, MEd, RN, FAAN, FEANS, MAE,
Department Nursing Science, University of Turku
Turku University Hospital
helena.leino-kilpi(a)utu.fi

Saija Inkeroinen, MHSc, BHSc, PHN, RN, Department of Nursing Science, University of Turku
Jenni Koskinen, MNSc student, BHSc, RN, Department of Nursing Science, University of Turku and Turku University Hospital
Vanesa Numanovic, MNSc, Helsinki University Hospital
Pauli Puukka, MSocSc, Department of Nursing Science, University of Turku
Riitta Tuominen, MNSc, Turku University Hospital
Heli Virtanen, PhD, RN, Department of Nursing Science, University of Turku

Partners in Turku University Hospital:
Johanna Laulaja, RN
Senni Kiukainen, RN
Mia Karlsson, RN

Partners in Turku City Welfare, City of Turku:
Taina Kilpi, RN

Partners in Helsinki University Hospital:
Ros-Marie Taponen, BSc

Research on patient education of patients with chronic kidney disease focuses on the usefulness and sufficiency of patient education. Research is done in collaboration with Turku University Hospital and Helsinki University Hospital.

Publications:

Inkeroinen, S., Koskinen, J., Karlsson, M., Kilpi, T., Leino-Kilpi, H., Puukka, P., Taponen, RM., Tuominen, R., & Virtanen, H. (2021). Sufficiency of Knowledge Processed in Patient Education in Dialysis Care. Patient Preference and Adherence, 15, 1165-1175. https://doi.org/10.2147/PPA.S304530

Inkeroinen, S., Leino-Kilpi, H., Tuominen, R., & Virtanen, H. (2021). Munuaissairautta sairastavat kokevat tietonsa riittäväksi ja hyödylliseksi. Elinehto, 50(3), 31.

Inkeroinen, S., Virtanen, H., Kilpi, T., Laulaja, J., Puukka, P., Tuominen, R., & Leino-Kilpi, H. (2020). Relationship between sufficiency and usefulness of patient education: A cross-sectional study of patients with chronic kidney disease. Nursing & Health Sciences, 22(4), 846–853. https://doi.org/10.1111/nhs.12770

Virtanen, H., Tuominen, R., Kiukainen, S., Koskinen, J., Koskenniemi, J., Laulaja, J., Numanovic, V., & Leino-Kilpi, H. (2019). Experiences of safety among patients receiving home dialysis therapies. Journal of Renal Care45(4), 223–231. https://doi.org/10.1111/jorc.12298

Patient education of patients with diabetes

The application of theory of planned behavior in self-management of patients with type 2 diabetes

Principal investigator: FangFang Zhao, PhD

Research regarding patients with diabetes, theory of planned behavior is used to analyze the connection of self-care activities to patient’s feelings and patient education in China.

Publications:

Zhao, FF. (2019). The diabetes-related self-care activities of people with type 2 diabetes: their level and associated factors (Doctoral dissertation).

Zhao, F. F., Suhonen, R., Katajisto, J., Stolt, M., & Leino-Kilpi, H. (2020). Association between diabetes-related self-care activities and positive health: a cross-sectional study. BMJ Open9(7), e023878. https://doi.org/10.1136/bmjopen-2018-023878

Zhao, F., Suhonen, R., Katajisto, J., & Leino-Kilpi, H. (2019). Factors associated with subsequent diabetes-related self-care activities: The role of social support and optimism. Nursing Open7(1), 195–205. https://doi.org/10.1002/nop2.379

Zhao, F. F., Suhonen, R., Katajisto, J., & Leino-Kilpi, H. (2018). The association of diabetes-related self-care activities with perceived stress, anxiety, and fatigue: a cross-sectional study. Patient Preference and Adherence, 12, 1677–1686. https://doi.org/10.2147/PPA.S169826

Zhao, F. F., Suhonen, R., Koskinen, S., & Leino-Kilpi, H. (2017). Theory-based self-management educational interventions on patients with type 2 diabetes: a systematic review and meta-analysis of randomized controlled trials. Journal of Advanced Nursing73(4), 812–833. https://doi.org/10.1111/jan.13163


The realization of empowering discourse and emotions in patient education of  working-age adults with T1-diabetes

Principal investigator: Silja-Elisa Eskolin, MNSc, ThM, PHN, RN,
Department of Nursing Science, University of Turku
silja.e.eskolin(a)utu.fi

Supervisors: Heli Virtanen, University Teacher, PhD, RN, Department of Nursing Science, University of Turku
Minna Stolt, University Lecturer, Docent, PhD, Podiatrist, FEANS, FFPM RCPS(Glasg), Department of Nursing Science, University of Turku

The objective of this study was to describe the realization of empowering discourse’s methods, content and discussion about diabetes related emotions in patient education by nurses from the perspective of working age adults with T1-diabetes. In addition, the study examined what kind of emotions the respondents had experienced in their everyday life, in relation to their health problem and how important they assessed discussion about condition-related emotions as part of the patient education.

Publications:

Eskolin S-E, & Virtanen H. (2021). Tasa-arvoista yhteistyötä – Pysyvä hoitosuhde tukee aikuisten tyypin 1 diabetesta sairastavien voimavaraistumista. Diabetes ja lääkäri, 50(3), 28–31.

Eskolin S-E. (2020). Voimavaraistumista tukevan ohjauskeskustelun toteutuminen ja tunteista keskustelu ohjauksessa. University of Turku, Department of Nursing Science. Turku, Finland. (Master’s thesis)

Empowerment of people with memory disorder and their families

Empowerment of older people with a memory disorder

Principal investigator: Marta Garcia-Pascual, Doctoral candidate

A study about patients with a memory disorder is carried out in Catalonia, Spain. The Expected Knowledge of Hospital Patients (EKhp) instrument is used to assess older patients’ knowledge for the improvement of patients’ and their relatives’ empowerment.


Significant others of working-age people with a memory disorder: Experiences of empowering patient education

Principal investigator: Eeva-Leena Jokinen, MW, RN
elkjok(a)utu.fi

Empowerment of patients with multiple sclerosis

Empowerment of people with multiple sclerosis

Principal investigator: Jutta Sohlman, RN
jutta.r.sohlman(a)utu.fi