Theoretical Basis and Instruments in Empowering Patient Education

The purpose of this research area is twofold. First, the purpose is to study the philosophical basis of empowering patient education: patients’ right to know about their health and care is studied with several samples. Second, the purpose is to develop and test instruments for empowering patient education: psychometrics of the Expected Knowledge (EKhp) and the Received Knowledge of Hospital Patients (RKhp) instruments have been evaluated and culturally validated.

Studies

Patients’ right to know

Patients’ right to know – Analysis of patients’ experiences

Principal investigator: Helena Leino-Kilpi, Professor, Nurse director, PhD, MEd, RN, FAAN, FEANS, MAE,
Department Nursing Science, University of Turku
Turku University Hospital
helena.leino-kilpi(a)utu.fi
+358 29 450 2455
+358 50 342 4384

Research team:
Saija Inkeroinen, Researcher, MHSc, BHSc, PHN, RN, Department of Nursing Science, University of Turku
Jouko Katajisto, Statistician, MSocSc, Department of Mathematics and Statistics, University of Turku
Minna Stolt, University Lecturer, Docent, PhD, Podiatrist, FEANS, FFPM RCPS(Glasg), Department of Nursing Science, University of Turku
Heli Virtanen, University Teacher, PhD, RN, Department of Nursing Science, University of Turku

Partners in Turku University Hospital:
Karolina Olin, Patient Safety Manager
Päivi Parjanen, Patient Ombudsman
Hanna Vuorio, Director of Nursing

The aim is to develop the philosophical and conceptual basis of empowering patient education, based on the existent literature and real-life situations. In this development, a fundamental assumption is that patients have a right to know about their health and care. In this right, knowledge is a key component of patient empowerment.

First part: Patients’ right to know will be analyzed by conducting a scoping review. The aim is to scope research-based evidence about patients’ right to know and assess its quality to identify knowledge gaps and indicate the direction for future studies about patients’ rights.

Second part: Patients’ right to know will be analyzed with a register-based study, including patients’ and their family members’ feedback, patient ombudsman complaints, and patient-reported patient safety incident reports in one hospital district in Finland. The aim is to analyze factors associated with the patients’ right know, and model factors supporting the right.


Analysis of patients’ right to know and associated factors

Principal investigator: Saija Inkeroinen, Doctoral candidate, MHSc, BHSc, PHN, RN
Researcher, Department of Nursing Science, University of Turku
saanin(a)utu.fi

Supervisors:
Helena Leino-Kilpi, Professor, PhD, MEd, RN, FAAN, FEANS, MAE, Nurse Director, Department of Nursing Science, University of Turku and Turku University Hospital
Minna Stolt, University Lecturer, Docent, PhD, Podiatrist, FEANS, FFPM RCPS(Glasg), Department of Nursing Science, University of Turku
Heli Virtanen, University Teacher, PhD, RN, Department of Nursing Science, University of Turku

The aim of this study is to analyze patients’ right to know and factors associated with it. The goal is to create a descriptive model of realization of patients’ right to know to contribute to the equal realization of patients’ rights.

The sample will be patients with cancer and orthopedic patients, enabling analyzing possible differences between patients with a chronic and a transient health problem and its care. Data will be collected with several validated instruments and analyzed with statistical methods. Results will provide a model describing the realization of patients’ right to know and its possible associations with patients’ knowledge-related preferences and behavior, level of health literacy, received knowledge, and patient and health-related factors.


Older people’s experiences of patients’ right to know

Principal investigator: Eeva-Leena Jokinen, MW, RN
elkjok(a)utu.fi

Supervisors: Helena Leino-Kilpi, Professor, PhD, MEd, RN, FAAN, FEANS, MAE, Nurse Director, Department of Nursing Science, University of Turku and Turku University Hospital
Saija Inkeroinen, Researcher, Doctoral candidate, MHSc, BHSc, PHN, RN, Department of Nursing Science, University of Turku

Instruments for empowering patient education

The Expected Knowledge (EKhp) and Received Knowledge of Hospital Patients (RKhp)

Principal investigator: Helena Leino-Kilpi, Professor, Nurse director, PhD, MEd, RN, FAAN, FEANS, MAE,
Department Nursing Science, University of Turku
Turku University Hospital
helena.leino-kilpi(a)utu.fi
+358 29 450 2455
+358 50 342 4384

Psychometrics of EKhp and RKhp instruments (©Leino-Kilpi, Salanterä, Hölttä 2003) were evaluated with an international sample of orthopedic patients. Based on it, an open-access article was published.

Validity and reliability will be evaluated in every new data collection.

If you are interested in the instruments, you can apply for permission to use them here.

Publications:

Leino-Kilpi H, Inkeroinen S, Cabrera E, Charalambous A, Fatkulina N, Katajisto J, Sigurðardóttir ÁK, Sourtzi P, Suhonen R, Zabalegui A & Valkeapää K. (2020). Instruments for Patient Education: Psychometric Evaluation of the Expected Knowledge (EKhp) and the Received Knowledge of Hospital Patients (RKhp). Journal of Multidisciplinary Healthcare, 13, 1481-1505. https://doi.org/10.2147/JMDH.S271043