Patients’ right to know

Principal investigator (PI): Helena Leino-Kilpi, Professor, Nurse director, PhD, MEd, RN, FAAN, FEANS, MAE,
Department Nursing Science, University of Turku
Turku University Hospital
helena.leino-kilpi(a)utu.fi
+358 29 450 2455
+358 50 342 4384

Patients’ right to know about their health, health problem, care and treatment is essential basis of empowering patient education: knowledge is key component of patient empowerment. Patients’ right to know has strong ethical foundation and it has been defined in Finnish law (785/1992).

First part: A scoping review about patients’ right to know will be conducted. Aim is to scope research-based evidence about patients’ right to know and assess its quality to identify knowledge gaps and indicate the need and direction for future studies about patients’ rights.

Second part: A register-based study will employ patients’ and their family members’ feedback, patient ombudsman complaints and patient-reported patient safety incidents reports concerning patient education and knowledge in one hospital district in Finland. Aim is to analyze factors’ associated with the patients’ right know and model statistically factors’ supporting the right.

Research team:
Saija Inkeroinen, Researcher, MHSc, BHSc, PHN, RN, Department of Nursing Science, University of Turku
Jouko Katajisto, Statistician, MSocSc, Department of Mathematics and Statistics, University of Turku
Minna Stolt, Adjunct Professor, University Lecturer, Docent, PhD, Podiatrist, FEANS, FFPM RCPS(Glasg), Department of Nursing Science, University of Turku
Heli Virtanen, University Teacher, PhD, RN, Department of Nursing Science, University of Turku
Partners in Turku University Hospital